When I last left you, we were "stumped" by the mass on Logan's liver. The doctor's were expecting and hoping that it was just another "normal" NF tumor. Logan had another MRI on his abdomen to further investigate. Finally, at Logan's usual chemo appointment that same week we were able to get an answer. After reviewing his MRI and consulting with other specialists, the doctors believe this mass to be a cavernous hemangioma. I was expecting them to say it was just another "normal" NF related plexiform neurofibroma, so this answer was a bit of a surprise. I'll save you the trip to google.com. Basically, a hemangioma is a collection of blood vessels that begin to cluster and grow like a tumor. They are typically very benign "tumors" and cause no problems, although, as with most things there is a risk of complications. The typical treatment is no treatment at all. Monitoring for problems is usually sufficient. Occasionally, surgery to remove the mass is recommended. They have even been known to treat these with Avastin, which Logan is currently getting. His doctors were slightly concerned over the large size of this hemangioma but have determined that since he appears to be unaffected by it, the "wait and watch" approach would be sufficient.
His usual chemo appointment was pretty unremarkable. He managed his nausea pretty well. His sleep, or lack of sleep I should say, was a bit of an issue on Thursday and Friday. Friday morning was a marathon of crying, screaming, tantruming, and whatever else you can think of. I'm pretty sure he cried/screamed for at least 4 hours straight. Thankfully that wore him out and a good afternoon nap later, he was back to "normal" (I use that term very loosely).
|Fishing with Uncle Bobby|
The following week brought our highly anticipated appointment with the neurologist that specializes in ADHD associated with NF. After a lot of discussion, we decided to stop the ritalin and try a non-stimulate drug instead. This drug effects his behavior in a very different way. The jury is still out on it's effectiveness. In addition, we are starting the process to have him evaluated. This will hopefully give us a better picture of why Logan is doing what he is doing and how we can help him.
After we had all of our appointments out of the way, it was time for some fun. We were able to get away for a vacation, which is a very rare occasion. We met the rest our my family in Duck, NC and spent a week in the sun and sand. It was a great and relaxing time (thanks to my family stepping in with some extra supervision of my kids.) I'm so thankful to have been able to get away and just have fun with family.