Just over a year has passed since we starting the journey on chemotherapy. It's hard to believe that Logan has been going through this for over a year now. I would love to say that the fear and anxiety has diminished over time, but I'm not sure that's true. While we know more now than we did a year ago, we still have a lifetime of questions ahead and all we can do it take it one question at a time. We know he can tolerate the chemo well and live as normal a life as possible. We don't know how much longer he will have to live like this. We know the chemo has worked in stabilizing the tumors. We don't know if it will continue to work as effectively. We have seen the majority of his body scanned and are aware of what is currently growing inside. We don't know what will grow or how fast. For now, all we can do is be thankful for his stable health and overall resilience while facing this difficult time. He is a truly amazing child.
In September, my family will be participating in the Central NJ NF Walk. The NF Walk is a national fundraising program of the Children's Tumor Foundation that supports NF research, raises awareness, and provides support for individuals with NF and their families. We have all seen how the viral ALS Ice Bucket Challenge has raised incredible amounts of money and awareness for ALS, a cause that certainly needed support. If we could accomplish even a small fraction of that as an NF community, we will have been a success.
On September 27th, we will join together as a family and team to walk (or run - good luck Aunt Bee) in support of Logan and all those people and families effected by NF. We will be joined by other families that are fighting the same battles, have the same fears and are looking for the same answers. Please consider donating to support our team efforts and this great cause. Every little bit helps. If you are a central NJ local, consider joining our team and walk along side of us. Follow this link for more information and click "Join Team" to join us or scroll down and select your favorite Team Logan member to support (I know who my favorite team member is!)