IF we are in fact done, he will still have to go in to get his port flushed monthly and will get another MRI after 3 months. If that MRI looks good, we can talk about getting his port out. We'll cross that bridge when we come to it.
We ALMOST made it to the end without another ER visit, but with an unpleasant stomach bug (vomiting, diarrhea, and the deal breaking fever) it was off for 2 days of IV antibiotic. Historically our ER port accesses are what nightmares are made of, but thankfully this time was different. We had a nurse that actually knew what he was doing and did a great job. He could have just as easily worked in the clinic. And what do you do with a 4 year old scared for an ER port access? Give him your iPhone and let him take selfies. As great as this ER visit was, we were still thankful to be able to do day 2 at the clinic.
Besides talking to the doctor about the potential end of chemo, we had to discuss some current leg pain. Logan has been pretty consistent in complaining of foot pain and has never really liked being on his feet for long but this week we got new complaints of leg pain. It started when he was sitting and watching TV and the trip that day to the zoo didn't make matters any better. He appeared to be having trouble getting up and down the stairs and into the car. His doctors indicated that joint pain has been something that other patients on these drugs have complained about. Hoping that ending his chemo treatments can put an end to that pain as well.
Next weekend we are very excited to be joining our families at the Central NJ NF Walk. Thanks to all of our very generous friends, families, coworkers and supporters, Team Logan has raised over $6000 to donate to the Children's Tumor Foundation. We are so very thankful to everyone that has supported us and this cause and look forward to joining other families living similar stories at this great event.
It is not too late to contribute to the NF Walk for the Children's Tumor Foundation. If everyone who reads this post donates just $5 (less than the cost of lunch at... well, pretty much anywhere) or more, we will surpass our donation goal. Find Team Logan's donation page here or support the man himself with your donation and/or kind words here.