Thursday, September 5, 2013

Week 6

Another week of one medicine. We spoke with the doctor about the weakness of his right foot and the compounding effect in his intestines (i.e. constipation, but I have been banned from talking about poop). Logan continues to show some decrease in strength on one side but they still felt OK proceeding with his treatment this week. We will continue to monitor his feet and start pushing some stronger stuff for the constipation. Prunes just aren't cutting it anymore.

Overall, Logan has come a long way from  his first appointment. He no longer fusses about getting a "big hug" (i.e. blood pressure) and he can manage most of his day without mommy's help. The only steps that still evoke the need for mommy intervention are wearing the mask for port access and getting the "big band-aid" off during the de-access.  Go figure, my kid doesn't even flinch at the inch long, 20 gauge needle puncturing his flesh every week, but wearing a Mickey Mouse mask for 30 seconds, he has a problem with.  

BP, O2 and temp.  A Triple Threat
Helping with his "tubie"
Helping to get his vitals

Today's wonderful treat at the clinic has a heartbreaking story.  All the kids coming through the clinic today were given a big coloring book and rather large goodie bag filled with candy (enough to keep him revved for about a week), cookies, crayons and bubbles. I was unsure of where these treats came from until another parent told me the story.  A little girl getting treatment lost her battle with cancer and every year on her birthday and one other time during the year, her parents bring treats for all the kids in the chemo clinic.  Truly heart breaking to think of the little ones that don't make it through this battle and the families that have to deal with this loss. 

There are so many kids fighting a much more difficult battle than Logan and all I want to do is cry for them. These kids, these babies fighting harder than most people will ever have to, just to live. To live a life that they have yet to even experience. One such story is that of little Leni Hsiao. A friend from high school recently began his 4-month-old daughter on an intensive treatment in her battle with a rare form of pediatric bone marrow cancer. You can read about her story here. My heart goes out to little Leni and the whole Hsiao family. 

I just ask "what if it were MY child?" I would move the earth save my child. People are always asking what they can do for us or how they can help Logan. Consider what you can do for these other fighters. Visit your local children's hospital and ask about volunteering your time, money or toys.  Find a charity organization and ask what you can do to help. Consider registering at to make a donation that may save a life. There are so many ways to help, you just have to do it!

Weekly post-chemo lunch

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