Tuesday, May 20, 2014

NF Awareness

Bracelets Parker helped make in NF awareness colors
Last week was an "off" week for chemo but we remained very busy. This month, being NF awareness month, my mother-in-law (Momsie - as the boys know her) wanted to do a special event at her work to raise awareness for Neurofibromatosis as well as raise funds for the Children's Tumor Foundation, an organization which is "dedicated to improving the health and well-being of individuals and families affected by neurofibromatosis".  Visit their website to www.ctf.org for more information.
Meeting the Mayor

Momsie works for the Township of wonderful Toms River, NJ. Friday we set out to visit many of the township departments to collect donations and share a bit of Logan's story.  The boys had a great time handing out stickers and lollipops and meeting so many wonderful and generous people.

While we were there, despite his busy schedule (which included dealing with an overnight fire across the street from town hall) Mayor Thomas F. Kelaher took time to meet with us and hear a bit about what Logan has been going through.  The boys even managed to persuade him to to give them some trinkets off his desk.  Leave it for Logan to "steal" from the mayor.  We appreciate Mayor Kelaher taking time to visit with us and hear a little about NF.

Our collection tour also included a stop at the local police department.  Not only did they contribute to the cause, they gave the boys a private tour of the facility.  Highlights of the tour for the boys included banging the gavel on the judge's stand, visiting the jail cells and sitting in and turning on the siren of a police car.

Locked up

Order in the court!
Logan's best "I just got arrested" face

 All in all it was a great day to share information about NF and raise money to help support research and resources for families effected by NF.  I want to thank everyone that we met and contributed so generously to our cause.  A special Thank You to Mayor Kelaher, the Toms River Police department and Momsie. 

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