Friday, August 9, 2013

Week 2

Week two was filled with pros and cons. Thankfully mostly pros.
Pro-  another day of entertainment including a show of "make believe", more great crafting and Logan's favorite clowns (who he chased around and wouldn't let leave).

Con- increased wait times due to, I assume, a larger than usual number of kids.  We arrived at the hospital at 8AM and left at 3PM. Nothing like a full day at the hospital.

Pro- spending the increased wait times commiserating with familiar faces. One of Logan's schoolmates was there recieving treatment as well. Small world.

Con- a more irritable 3 year old. But hell, spending 7 hours in the hospital made me irritable too.

Pro- MAJOR improvement in the access and unaccess of Logan's port. Don't get me wrong, he was still upset and he certainly still cried, but he was far more reasonable.  We can credit this to the use of the numbing cream prior to our appointment. He also did a great job with all the line work. For all the flushes and injections, he actually handed the nurses the end of his line and sat chatting with the nurse about everything they were doing. Having to sit for almost two hours in a chair with tubes coming out of him, he didn't once complain, ask to go home or fuss in the least bit. It is amazing how "normal" this is to him. He even got a good nap in. I got a ton of positive looks and comments from the nurses about how amazing he was. I was sooo proud.
Con- did I mention how long we were waiting??
Pro- The doctors were very happy with how well Logan tolerated week one. We saw no nausea and very little fatigue. The only noteworthy report was that Logan complained of his feet hurting. This is something that they will monitor closely as one of his medications can cause significant nerve damage in the extremities. He passed his neuro exams with flying colors and cleared the necessary blood counts. Because the doctors were so happy, they suggested trying this week without the anti-nausea meds.  They wanted to see if the medicine was working or if he just didn't need it. The less medicine he needs, the better. 

Con-  We followed the doctors recommendation and did not give the anti-nausea medicine. First thing this morning, with only a few bites of breakfast, Logan threw up. I guess it's back on the anti-nausea meds.

Pro-  wrapping up our long day with a trip for ice cream. As it was Miracle Treat Day and Dairy Queen was donating money from every Blizzard sold to the Children's Miracle Network, this was a no brainier. Children's Miracle Network works to raise funds to help support children's hospitals around the country. We were quite happy to help support an amazing cause AND eat ice cream!!!

All in all, it was a great day. The pros far outweigh the cons and Logan showed us all, once again, how absolutely incredible he is. 

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